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for Parents
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This page is for the wonderful children & families who have shown great courage & love. I've got a note from a young lady in Canada. Pls e-mail me if you would like to contribute any story, article or teaching ideas. If you wish to start a support group, pls contact me ! Should my child take Chinese ? My child can't keep still for 1 minute. Should my child repeat kindergarten? . . . If you want to know the answers to many parenting questions, join a support group to help you make an informed decision. You'll be relieved to know you're not alone. Learn about how someone else coped with his/her disabilities & decide if you want the same for your family. Share your burdens, joy and hopes. Here's a online site for support groups. [Click here] There are some support groups which I have not listed here. Go to http://groups.yahoo.com/ find a group by keying in keywords such as "autism" and "Singapore", then enter SEARCH.
1. Autism 3. Dyspraxia 6. Dyslexia or Specific Learning Disabilities (SpLD) 7. Attention-Deficit-Hyperactivty Disorder (ADHD) 10. Augmentative and Alternative Communication (AAC) 11. Cleft Lip and Palate Association of Singapore (CLAPAS) and Family Support Group (FSG) 13. Turner Syndrome 14. Neonatology Parent Support Group 15. Prader-Willi Support Group
1. Autism If
you wish to join the Autism
Resource Centre's support groups, please contact
Ms
Elsie Cheong, ARC(S) Information Officer, to
reserve a place. These
meetings are facilitated by with the assistance of a parent team leader. Tel:
6323 3258 ext 15 or
The Autism Assn (Spore) also runs two support groups in English and Chinese. Here's a
link to an interview with a
Singaporean parent. The views expressed are a little
outdated. Nonetheless, it offers a view to our past & to some extent,
segments of the population at large. Things have changed and we should continue
to push for more changes. Click HERE
.
2. Down Syndrome : Infant Support Group DSA runs support groups for members who have infants with Down syndrome aged 3 years and below. The aims of support group are to provide mutual support and opportunities to exchange experiences, discuss common issues and concerns in caring for a baby with Down syndrome. Future activities may include talks by specialists on topics of interest. All meetings will be held at DSA Centre unless stated. Tel: 6278-3907 Fax: 6278-3908 Email: nc0156@cyberway.com.sg
Ngok Chuin Chan is the parent of a child with dyspraxia. His child is attending a mainstream school. He wishes to start a support group. His email address is NgokChuin@yahoo.com.sg There is another support
group at S-Dyspraxia@yahoogroups.com
It aims to share thoughts and experience
with
other parents.
to post a message, send an email to sotosyndrome@yahoogroups.com
Learning Differently is a
study-group of the Society for Reading and Literacy. Meetings are held once per
month. The moderator, Alefiya, will send email announcements of upcoming meetings.
6. Dyslexia or Specific Learning Disabilities (LD) Dyslexia Association of
Singapore's Discussion Forum website : http://www.das.org.sg/cgi-bin/yabb/YaBB.cgi
7. Attention-Deficit-Hyperactivty Disorder (ADHD) Society for the Promotion of ADHD Research & Knowledge
(SPARK)
Our care group was formed with the aim to support each other - help children with TS and their parents and families cope with the disorder; give support to TS adults. We believe in public
education and the aim of this website is to create and promote public
understanding of TS. We hope that one day, society will come to understand and
accept that TS sufferers are just as normal as anyone else. website : http://sg.geocities.com/ticscare/ to post message, send an email to
tourette_sg@yahoo.com
The Homeschool group was started in the 1990s with a few families who were homes schooling their children. They meet regularly & participate in a variety of activities. website : http:/www32.brinkster.com/singaporehg
10. Augmentative and Alternative Communication Augmentative and Alternative Communication (AAC) refers to methods of communication that enhance (augment) or replace (alternative) conventional forms of expression. Individuals who use AAC use a variety of methods to communicate. These can range from manual signs to complex electronic communication devices. AAC enables individuals with little or no functional express themselves, form relationships, and participate in school or the work place. It is empowering! The moderator of the group is Sarah, a speech therapist from Ang Mo Kio Community Hospital website : http://groups.msn.com/AACSingapore
11. Cleft Lip and Palate Association of Singapore (CLAPAS) and Family Support Group (FSG) CLAPAS is the professional body comprising members who are health professionals involved in the treatment and care of cleft patients. The CLAPAS family support group is affiliated to CLAPAS. It is made up of parents of, families of and individuals with cleft deformities, and other friends (nurses), who come together with a shared interest in helping individuals with cleft deformities.
A detailed schedule of events is available from Ward 63 (Plastic Surgery), Tel
(65) 6321 4631. 12. TOUCH Caregivers Centre NEW Touch Caregivers Center is a one-stop community resource centre. It aims to enhance skills and develop coping strategies to assist in the caring role. The Centre provides practical help, information and support to caregivers and people with disabilities. The website is available in English and Mandarin. contact 1800-352 1622 website: http://www.caregivers.org.sg/ Post your queries in the relevant section in the FORUM page.
This support group is organised for patients with Turner syndrome and their families. Children's Medical Institute and the pharmaceutical company Serono have jointly organised biannual meetings and parties for the members of the group. We hope to bring the patients and their families together to educate and increase awareness about this condition, and more importantly to be acquainted with other families with children who have Turner syndrome. The children and their parents can discuss and voice their concerns to the health professionals and the other families, and learn to cope better with the condition. Contact: NUH Turner
Support Group, Children's Medical Institute, National University Hospital, website: http://www.med.nus.edu.sg/paed/tsgweb/aboutus.html
14. Neonatology Parent Support Group NEW a) KK Women's and Children's Hospital The support group is managed by doctors and nurses from the Department of Neonatology in KKH. The support group aims to help parents with premature babies cope better. Monthly sharing sessions among parents of current Neonatal Intensive Care Unit (NICU) babies and parents of ex-NICU babies are organised for members to draw support from one another. Some other activities include a special educational programme for parents of low birth weight infants to prepare them for their babies' discharge, and home care visits for babies with special needs e.g. home oxygen therapy. b) National University Hospital Early Starter Club is a support group for preterm infants and their parents. The group was started in 12 Feb 1994. It is made up of volunteer parents, medical social workers, physiotherapist, speech therapist, occupational therapist, pharmacist, dietitian, nurses and doctors. Preterm infants and their parents often face unique concerns and issues, both during hospitalization and after discharge. Since 2002, the group is affiliated to Club Rainbow, Singapore, a non-government charitable organization. The group organizes two meetings / workshops a year to address the unique concerns of parents of premature infants. Other activities include parent buddy for parents of newly admitted preterms and home visitation of newly discharged patients. There is also a newsletter for the group. The group's activities are also posted on the website. Contact:
SSN Choo Lilain, Neonatology, National University Hospital 5 Lower Kent Ridge
Road Singapore 119074 Tel: 67725240
15. Prader-Willi Support Group NEW website: http://pwssg.com/index.php
updated : January 12, 2006 ã 2000 Yeo Liew Ping
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